Caregiver Burden
Caregiver burden refers to the financial, emotional, physical, administrative, and time costs placed on family members providing care. In school systems, it grows when families must replace missing supports, manage crisis, document harm, and fight for access.
-
Iatrogenic harm and the parent advocate: how school systems produce disability in the families they fail
The body keeps the account even when the institution refuses to. What the school system produced in the parent who spent years trying to hold it accountable is not caregiver burden — a word that belongs to the person carrying it — but iatrogenic harm: specific, dated, attributable, and fully known to the institutions that…